Monday, March 30, 2020

Writing while living with constant pain

I am a writer that lives in constant pain. I suffer from many ailments, and I MUST stay home because if I were to be infected with the Coronavirus, it would quite literally finish me off. I also do not take pain medicine for several reasons. The first is that it does not take any of my pain away. The second is that it causes me to be grumpy and foggy, neither of which I can stand. So, the only way I can manage my pain is to see a doctor weekly.

However, during this virus shutdown, I have not been able to go to my weekly appointments with my doctor. Those appointments are the only thing that keeps me from being in so much pain that I cannot move. I decided that since I was going to miss appointments, I would keep track of how I felt without seeing my doc. This is what happened …

3/16/20 The first day I missed my appointment didn’t go so bad. My body could tell the difference, and I was tired throughout the day, but my pain was manageable. It wasn’t until Saturday of that week that I felt a twinge in my neck that something was going wrong.

3/23/20 The second appointment missed. It made me sad to think I’d missed two appointments because of this damn virus. But my wonderful doctor texted to check in on me, so it made me feel better. I was also surprised that I was managing quite well without the appointment. I’d be sorry about that soon.

By Wednesday, I knew I would spend the rest of the week in pain. It came on suddenly, the pain that is. Like an explosion and all at once, my body was on fire.

The pain varies in intensity depending on where its located. My neck feels like it is trying to snap while my low back is just reminding me that it is present and accounted for in the pain. Both my arms go numb while my fingers and palms tingle, like straight pins, are being pushed into my skin in waves of torture. All of that is background noise to the vividness of the migraine—who announces itself as Lord of my pain.

It puts me straight to bed, right where it wants me. In bed, I can do nothing, I can be no one, I can only be its slave. As time passes, the migraine gets bored and eases up. I’m allowed out of bed so that I can care for my children, but after I make dinner, it is straight back to bed, but I did not sleep.

Thursday passed in a blur of pain. I can’t even recall how the day went because all I remember is pain. Sleep also evaded my grasp again that night.

Friday came, and while the pain in my neck had not ceased, my arms weren’t as numb and my fingers and palms no longer tingled, the straight pins are back in their metaphorical cushion far away from me. The migraine, however, paced back and forth outside my head, I could feel it staring at me trying to decide if it wanted to come in. I rubbed my neck and waited for it to decide. It stayed on the outskirts, just tapping on the windows occasionally to remind me it hadn’t left.

Groceries were delivered Friday evening, so I had to clean everything that arrived at the house. The day passed, and I was in and out of pain. I laid down to sleep at around 10:30. Sleep came at about 4:00 in the morning. But I was awake by 6:30 on Saturday, though I did not leave my bed until 11:30.

Saturday: I couldn’t give in to the migraine or the pain, because I had to function. I had to vacuum and clean the carpets. The biggest problem with all of that is that I had to move my bed. My queen size bed with the large wooden frame. It sat on carpet sliders; it should move with ease—at least that’s what I try to convince myself of. I shouldn’t have done it. I could hear the migraine laughing at me when I began to push the heavy frame.

The pain would have to fester where it was because I had to finish my tasks. There’s no one else to complete the tasks, there’s no one else to help, I’m the only one that can do it, so I laughed back at the migraine and the pain and swore at them to leave me alone. They swore back and pushed into my body like a corkscrew into a cork, taking hold in every possible place while I fought back and continued on.

The migraine and pain won their battle when I laid down on the couch at 3:00pm, where I stayed until after 10:30pm. I couldn’t move. When I noticed it was dark outside, I allowed myself to force my body into a standing position, I walked to my bedroom and realized that my bed was still moved. I called for help from a teenager because there was no way I’d be able to move the bed, the pain was too much, the migraine and pain had their gold and silver trophy’s and were dancing around my room in triumph.

Once the bed was back in its place, and the teenager had receded back into its hiding place, I laid down and attempted sleep. The constant noise inside my head—that only I can hear—filled my ears and made sleep impossible. The sound is that of helicopter propellers—the ones you hear in a movie where the noise is slowed down as someone sees the blades coming for them—constant in my head without reprieve.

Not to mention the pain that caused the tossing and turning because there was no way to get comfortable. When I began to fall asleep, the migraine woke me, it did not wish to be forgotten. I attempted to find Mr. Sandman for hours and hours and finally passed out some time past 3:00am.

Sunday: the clock reads 6:30 when my eyes open. The migraine greets me with a yawn and then abruptly wakes up—seeming to have had an espresso, it comes at me full force. The helicopter blades began pounding at my ears. My neck ached, my arms, my fingers, and my palms start tingling. My low back has decided that it wants the stage for a while, so it bites at me, too.

I say screw it and get out of bed anyway. I sit at my computer so that I can try and accomplish something with my novels. I have to hold my neck with my left hand while I type with my right. Holding my neck in just the right way silences the helicopter and helps the pain subside some. It does not take the migraine and pain away, but it helps.

The day I missed my third appointment I spent most of the day in bed. I could barely lift my head from my pillow and the numbness and tingling took over my entire body. My head pounded all day. All I wanted was to be in a cold dark room alone. Being a single parent that did not happen. I have responsibilities that I must tend to. However, though I got up many times, I returned to bed after each.

I don’t know how long the Coronavirus will keep me away from my doctor, but I also don’t know how long my body can manage without my head on straight. I wish it would just stay where it’s supposed to stay, but I know that’s just a dream.

But it’s okay! Because I will survive, it’s what I do best. Even when I think I can’t, I can, and I do.

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